Caring Matters Now research update September 2023
During this session at our BIG Weekend, we had the privilege of hosting an annual research update from Professor Veronica Kinsler, world leading specialist in CMN.
Details
Ireland Regional Gathering review – 1st April 2023
It’s a long way to Tipperary! Or is it? As we were planning our annual support event for Dublin Zoo in October this year, we had a brainwave to host another gathering somewhere else in the country. Ireland’s not that big and with our positive “sure it’ll be grand!” attitude, we embarked on hosting two…
Ireland Regional Gathering
Date: Saturday 7th October 2023 Time: 11am Location: Dublin Zoo This is a great opportunity to meet your regional support contact and develop friendships with other CMN families in a relaxed environment. Dublin Zoo is an enjoyable day out, it’s home to a vast range of animals and is on flat terrain which is helpful for everyone! There…
Ireland Regional Gathering review – 10th September 2022 – Tayto Park
On Saturday, September 10, we were delighted to welcome our families from all over Ireland to Tayto Park to celebrate of the 25th birthday of Caring Matters Now UK and the 1st birthday of Caring Matters Now Ireland.
Emme’s Story
Our beautiful second daughter Emme, was born on the 9th July in Antrim Area Hospital. As with everything Emme does, she arrived on her own terms, 11 days after her due date. I had a fairly quick labour with Emme, after what was a normal pregnancy. I didn’t notice Emme’s birthmark straight away, I remember…
Our Online Community groups are restarting in Autumn
Back by popular demand! We are gearing up to restart our Online Community groups throughout the autumn and winter months.
Anne’s Story
Anne tells us about her experience of living with CMN. Her journey has taken her a long way from her challenging early years in Tipperary. What was it like for you growing up with CMN? I grew up in the countryside in County Tipperary in the 60’s with my parents, my brother Jim and sister…
Ireland Regional Gathering review – 2nd October 2021
On Saturday 2nd October, we were delighted to host the first in person Ireland regional gathering since the start of the pandemic. We planned the event early in the year for Dublin Zoo as it was an outside venue, optimistically hoping that any restrictions would be a thing of the past by October, but alas, it was not to be. (Another time, Dublin Zoo!)
Share your story on Rare Disease Day, 28th February 2022
In conjunction with Rare Disease Day 2022, Caring Matters Now Ireland is partnering with CMN patient support groups across the world to raise global awareness of Congenital Melanocytic Naevus.
Caring Matters Now Ireland is 1 year old!
It’s hard to believe that Caring Matters Now Ireland is now 1 year old! The charity was registered in December 2020 and was launched virtually in March 2021 on St Patrick’s Day. The charity owes huge gratitude to Caring Matters Now UK who have been instrumental in their support to date in getting Caring Matters Now…
VHI Womens Mini Marathon
If you or your friends are thinking of participating in this years VHI Mini Marathon, why not consider Caring Matters Now Ireland as your charity of choice. We will send you out a free Caring Matters Now Ireland t-shirt to wear on the day and some goodies for taking part. https://www.vhiwomensminimarathon.ie/
Lauren’s Story
‘My Story’ written by Lauren, age 15 I am one of the only teenagers I know of with CMN to live in Ireland. My CMN is on my back and legs and I have moles all over my body. When I was born the doctors had to ask around the hospital to see what my…
Eve’s Story
Our Warrior Princess Written by Eve’s mum – Sabrina After a perfectly normal pregnancy, our second daughter Eve was born on the 8th August 2018 with a very rare skin condition called Congenital Melanocytic Naevi (CMN). This condition is caused by a gene mutation resulting in more than half of Eve’s body being covered in…
Caring Matters Now Ireland
We are thrilled to announce the establishment of Caring Matters Now Ireland. Over the past 24 months, the Caring Matters Now Board of Trustees have been working towards establishing a sister charity in Ireland.
Veronica Kinser awarded an NIHR Professorship
We are thrilled to announce Veronica Kinsler has been awarded an NIHR Professorship to continue to research targeted therapies for CMN and melanoma.
‘HOW DO YOU C ME NOW?’ BOOK LAUNCH
Caring Matters Now is very excited to announce the launch of our much-anticipated photographic book ‘HOW DO YOU C ME NOW?’ This stunning book celebrates the beauty and lives of all those affected by CMN and encourages the world to embrace visible differences. Featured within this beautifully presented hardback are 30 striking portraits of inspiring children and adults affected by CMN from around the world; representing 13…
Elijah’s Story
Elijah was born on 2nd May 2014, after a healthy, normal pregnancy. Our daughter had been born 16 months previously and having been induced to begin a 53-hour labor with her, we were delighted at Elijah’s easy arrival! We were “ready for this,” and we’d “had a baby already”- we were going to “really enjoy…
Jodi’s Story
I was 6 years old and sitting in the bath playing with small toys, when I looked down at my skin and stared at the big brown, hairy, lumpy birthmark that covered all my back, wrapped around onto my tummy and continued down past my bottom onto the top of my thigh. As I stared…