Caring Matters Now research update September 2023
During this session at our BIG Weekend, we had the privilege of hosting an annual research update from Professor Veronica Kinsler, world leading specialist in CMN.
During this session at our BIG Weekend, we had the privilege of hosting an annual research update from Professor Veronica Kinsler, world leading specialist in CMN.
It’s a long way to Tipperary! Or is it? As we were planning our annual support event for Dublin Zoo in October this year, we had a brainwave to host another gathering somewhere else in the country. Ireland’s not that big and with our positive “sure it’ll be grand!” attitude, we embarked on hosting two…
Date: Saturday 7th October 2023 Time: 11am Location: Dublin Zoo This is a great opportunity to meet your regional support contact and develop friendships with other CMN families in a relaxed environment. Dublin Zoo is an enjoyable day out, it’s home to a vast range of animals and is on flat terrain which is helpful for everyone! There…
On Saturday, September 10, we were delighted to welcome our families from all over Ireland to Tayto Park to celebrate of the 25th birthday of Caring Matters Now UK and the 1st birthday of Caring Matters Now Ireland.
Our beautiful second daughter Emme, was born on the 9th July in Antrim Area Hospital. As with everything Emme does, she arrived on her own terms, 11 days after her due date. I had a fairly quick labour with Emme, after what was a normal pregnancy. I didn’t notice Emme’s birthmark straight away, I remember…
Back by popular demand! We are gearing up to restart our Online Community groups throughout the autumn and winter months.
Anne tells us about her experience of living with CMN. Her journey has taken her a long way from her challenging early years in Tipperary. What was it like for you growing up with CMN? I grew up in the countryside in County Tipperary in the 60’s with my parents, my brother Jim and sister…
On Saturday 2nd October, we were delighted to host the first in person Ireland regional gathering since the start of the pandemic. We planned the event early in the year for Dublin Zoo as it was an outside venue, optimistically hoping that any restrictions would be a thing of the past by October, but alas, it was not to be. (Another time, Dublin Zoo!)
In conjunction with Rare Disease Day 2022, Caring Matters Now Ireland is partnering with CMN patient support groups across the world to raise global awareness of Congenital Melanocytic Naevus.
It’s hard to believe that Caring Matters Now Ireland is now 1 year old! The charity was registered in December 2020 and was launched virtually in March 2021 on St Patrick’s Day. The charity owes huge gratitude to Caring Matters Now UK who have been instrumental in their support to date in getting Caring Matters Now…